We talk with How I Met Your Mother co-creator Craig Thomas about his new novel That’s Not How It Happened. His novel is inspired by his experience raising his son, Elliott, who has Jacobson Syndrome. Craig shares how parenthood, storytelling and disability intersect and why every family deserves to tell their story with humor and hope.
This week we are honored to interview actress, writer, producer and director Lena Dunham. Lena cast our son, Liam, in her film SHARP STICK and it was one of the most supportive, inclusive and beautiful experiences we’ve had on this journey. Her set was a model environment for our society and we talk to her about how she developed her advocacy for so many marginalized groups and individuals, what she learned from working with Liam and her future family plans.
We sat down with our longtime pediatrician, Dr. Ilona Kleiner, who has been with our family since the day Sophia was born and has guided us through Liam’s journey with wisdom, honesty and compassion. Dr. Kleiner shares her perspective on treating children as whole individuals far beyond a diagnoses or statistics and the profound impact that kind of care can have on both medical outcomes and family life.
Challenges and the unknown are an everyday thing that helps tell our stories and Maezen talks about finding our space and our 'me' time. It may feel like work but let's redefine the meaning of the word.
Dr. Brian is the director of the Down Syndrome Program at Massachusetts General Hospital, a Board-certified medical geneticist and has dedicated his professional energies toward children with cognitive and developmental disabilities. In this episode we talk about the impact of Alzheimer’s in the Down syndrome community and we discuss some proactive steps that may help to improve the long-term wellness for people with Down syndrome.
Dr. Jill Lasky discusses the importance of Pediatric Dentistry, how to introduce dental care and specifics pertaining to the Down Syndrome community. We also discuss methods and tools for parents who want to support their children in making good dental health habits.
This song, "Chromosome", is the theme music for our Down syndrome parenting podcast.
Stay safe out there and take a listen!
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